TERMS OF USE FOR THE DIGITAL HEALTH PASSPORT APP (“TERMS”)
PLEASE READ THESE TERMS CAREFULLY BEFORE USING TINY MEDICAL APPS SERVICES.
IF YOU DO NOT AGREE TO THESE TERMS, YOU SHOULD EXIT THE PLATFORM IMMEDIATELY.
IF YOU BELIEVE THAT YOU OR THE PERSON YOU ARE ASSISTING IS IN AN URGENT OR EMERGENCY SITUATION YOU SHOULD IMMEDIATELY DIAL 999.
YOU SHOULD CALL 999 IMMEDIATELY in a critical or life-threatening situation, such as if someone has:
- difficulty breathing
- severe bleeding and it can’t be stopped
- severe chest pain
- a severe allergic reaction
- severe burns or scalds
- loss of consciousness
- major trauma such as the result of a serious road traffic accident, a stabbing, a shooting, a fall from height or a serious head injury
- acute confused states and fits which aren’t stopping
- you believe someone is having a heart attack or stroke
Please take a few minutes to understand how to make the safe use of the Digital Health Passport. A basic summary is given below:
- In an emergency call 999.
- The intended purpose (of the Digital Health Passport) is to provide content and functionality to support self-management of Asthma and Allergies.
- No direct clinical benefits are being claimed for the Digital Health Passport.
- The Digital Health Passport should be used alongside appropriate clinical care and should not be used as a replacement for clinical care.
When using the app remember:
- If you are unsure about your asthma triggers you can discuss this with your nurse or doctor.
- The pharmacist, doctor or an asthma nurse should show you how to use the inhaler (and spacer) correctly.
- If you are unsure when you should be taking the medication please check with your pharmacist before setting any reminders.
- If you do not know your best peak flow you should contact your GP or asthma nurse.
- If you don’t understand the signs that your asthma is getting worse please speak to your GP or asthma nurse.
- If you do not have a Personalised Asthma Action Plan (PAAP) please contact your GP or asthma nurse/specialist.
- If you have an adrenaline autoinjector pen, but do not have an allergy action plan please contact your GP or allergy nurse/specialist.
Instructions for use – What is the app for?
The intended purpose is to provide content and functionality to support self-management of Asthma and Allergies.
The content is from high quality sources such as Asthma+Lung UK, Beat Asthma and the NHS Website. The functionality such as a place for your Asthma Action Plan and Medication reminders support national and international clinical guidelines for Asthma (E.g. NICE, BTS/SIGN and GINA).
Currently the target audience is young people (13-25) living with Asthma and Allergies. The main focus is on Asthma with Allergies being covered as a common comorbidity of those living with Asthma.
The secondary audience is parents of children living with Asthma and Allergies (ages 5-12).
Finally whilst targeted at children and young people the Digital Health Passport can be used by those 26+ (tertiary audience)
No direct clinical benefits are being claimed for the Digital Health Passport.
However there is evidence that increasing your confidence and skills to self-manage (known as patient activation can improve clinical outcomes). There is also evidence that taking your medication correctly (Inhaler technique) and regularly (adherence) is a key component of overall asthma control.
The Digital Health Passport should be used alongside appropriate clinical care and should not be used as a replacement for clinical care.
Instructions for use – Using the app safely.
Download the Digital Health Passport from the apps store.
Consent
In line with the Data Protection Act 2018 (DPA 2018), and the UK General Data Protection Regulation (UK GDPR) we can only offer the app to users aged 13 and above. This is because 13 is the minimum legal age for requesting consent as the lawful basis for processing personal information.
The Digital Health Passport can be used by parents/carers for children under 13 in which case the app is designed to be used solely by the adult.
As part of your on-boarding you will be asked to consent both to our privacy notice (which details how we comply with laws around processing personal data). As well as the Terms of use on this page (which covers how to use this platform safely).
Account Creation
You can create an account by signing up with an email address/password, or by using a social login (eg facebook). No personal health data is shared with the social media company.
You can still access much of the app without creating an account. But if you want to personalise the app, track symptoms and upload care plans you will need to register.
You will be asked if the app is for you, or someone you care for – and some basic details, such as name, gender, ethnicity and age. Only a name is needed.
Your conditions – asthma, allergy or both. If you are not sure of any answers please check with your doctor or nurse.
Air quality alerts
This is information about local air quality, such as pollen that could affect your condition. Sign up for daily alerts about local air quality.
The Air Quality Index (AQI)
Is used for reporting daily air quality. It tells you how clean or polluted your air is. AQI values at and below 100 are generally considered to be satisfactory. When AQI values are above 100, air quality is considered to be unhealthy.
Inhalers
The pharmacist, doctor or an asthma nurse should show you how to use the inhaler (and spacer) correctly.
It is important to use your inhaler the right way. You can find out the type of inhaler you have by looking at the packaging, or talking to your pharmacist.
The videos on the app can help you to remember what you have been shown.
Medication alerts
If you are unsure when you should be taking the medication please check with your pharmacist before setting any reminders.
Taking your medications as prescribed is the best way to avoid getting symptoms. Setting reminders makes it easier to stay on track. When the pharmacist gives you medication it will say how to take it on the label they provide – for example one puff, twice a day – in this case you can set a morning and evening reminder.
Any changes to your reminders can be made by going to the Reminder Hub section found in the upper left hand corner toolbar on the home page.
Allergens
Substances that cause allergic reactions are called allergens. It is useful to recognise your allergens so that you can avoid them if possible.
Adrenaline pen
Have you been prescribed an adrenaline auto-injector pen for anaphylaxis? If so, select the type you have so that you can see the correct reminder instructions on how to use it. If your adrenaline pen has changed, you can change your selection in the ‘About me’ profile page.
Best Peak Flow
If you do not know your best peak flow you should contact your GP or asthma nurse.
Peak flow is a measure of how quickly you can blow air out of your lungs.
Knowing your best peak flow is important, because if your peak flow recording falls below a certain level it is a sign your asthma is getting worse you may need urgent or emergency help.
Recognise an asthma attack
If you don’t understand the signs that your asthma is getting worse please speak to your GP or asthma nurse.
Asthma Action Plan
If you do not have a Personalised Asthma Action Plan (PAAP) please contact your GP or asthma nurse/specialist.
Using an asthma action plan reduces your risk of having an asthma attack. You can upload a copy as a pdf or take a photo of your plan. Once the plan has been uploaded you can share it with your friends and family via the care plan button on the app.
Allergy Action Plan
If you have an adrenaline autoinjector pen, but do not have an allergy action plan please contact your GP or allergy nurse/specialist.
Allergy action plans are for people at risk of anaphylaxis. These plans have been designed to facilitate first aid treatment of anaphylaxis. You can upload a copy as a pdf or take a photo of your plan. Once the plan has been uploaded you can share it with your friends and family via the care plan button on the app.
The ‘on-boarding’ module covers a lot of the core functions of the app – you can skip these sections if you like. You will be encouraged to complete missing sections as part of your ‘Journey’ within the app – for example, uploading as Asthma Plan if you haven’t already.
Air quality alerts
This is information about local air quality, such as pollen that could affect your condition. Sign up for daily alerts about local air quality.
Sections that you skipped during on-boarding, or want to change, can be edited via your profile page. You can access the profile page from the menu button on the top left – ‘About me’.
About me
This is your profile page. From here you can see the details you have entered and keep a track of your learning progress. You can edit your asthma triggers, allergens, health conditions, inhaler type, adrenaline pen, best peak flow and location on this page.
Care Plan
This is where your asthma plan and allergy plans can be uploaded if you have a new one (or if you skipped this before). From here you can see old plans, delete plans and importantly – you can share your plan with friends, family and carers.
You should have been provided a care plan (eg a personalised asthma action plan) from your GP practice or your hospital team. If you do not have one you can contact your GP and ask for one. The care plan contains instructions for use that should have been explained to you by the person that provided the plan. If you are unsure you can contact your GP practice for advice. Most care plans have a section for what to do everyday; another section for what to do if symptoms are getting worse and a section for what to do in emergencies.
From the Care Plan section of the app you can see your current care plans, previously uploaded plans, delete plans and importantly – you can share your plan with friends, family and carers.
Emergency plan
This will show emergency instructions for asthma and/or severe allergic reactions (anaphylaxis). It is good to know this information and understand what to do before any emergency might happen. In an emergency you should follow the instructions and call 999. You can also keep important contact details here.
Health tracker
If you have yellow or red symptoms please follow the instructions in your action plan/emergency plan. If in doubt contact 111 (or 999 in an emergency).
Used to track symptoms or peak flow readings. Symptoms that are yellow or red are generally more serious than those that are green.
Health Hacks
A selection of resources to help you learn more about your health and well-being. Some sections have a quiz at the end. You can follow your progress on the ‘About me’ profile page.
Reminder hub
Set reminders for medications, get air quality alerts and set up a time to receive emails about your learning journey.
Support
Accessed from the menu icon in the upper left hand corner of the home page. There are links to a number of resources for asthma and technical support.
Settings
Request your data, delete an account or change your password, as well as access the terms and conditions and privacy permissions. You can also log out of the app from your settings.
Version 1.4 13th December 2022
